This website uses cookies to help provide you with a better service, and if you continue without changing your settings we assume you are happy to use them. You can change your cookie settings at any time and you can read our cookie policy here. Continue using cookies
Campaigner Network

Campaigner Network

Join the fight and help people live their lives to the full

We need your help to campaign for better care and services for people with chest, heart and stroke conditions.

Together, we can make a real difference.
Join our Campaigner Network now to get regular updates on Chest Heart & Stroke Scotland campaigns, opportunities to get involved and the impact of your support.

Get Email Updates

  • Hidden
  • This field is for validation purposes and should be left unchanged.

Give us your views on what our future campaigns should focus on.

Take Survey

No Life Half Lived

Our Hospital to Home service provides life-changing support for people living with a chest, heart or stroke condition. But it’s not yet available across the whole of Scotland.

Thanks to our amazing supporters who signed our No Life Half Lived petition and wrote to their election candidates, we succeeded in getting each of the five main political party leaders to confirm their support for Hospital to Home. We’re now working hard to make sure a national Hospital to Home service becomes a reality.

Read more

Making a difference

One in five people in Scotland are living with a chest, heart or stroke condition. We believe everyone has the right to live life to the full, so that’s why we’ve been campaigning to improve the support available to people across Scotland.

We’ve successfully campaigned on a range of issues – and it’s all thanks to our incredible Campaigner Network.

Long Covid Care Now

Together with people living with the devastating effects of Long Covid, we successfully campaigned for the Scottish Government to jointly fund a new support service for the thousands of people across Scotland living with this new health condition.

Read more

Bring Back Thrombectomy

Thrombectomy is a specialised treatment that improves people’s chances of recovery after a stroke. Together with stroke survivor Robert Baldock, we called on the Scottish Government to make sure that thrombectomies were made available in Scotland, and pilot services have now begun in Dundee and Edinburgh.

Read more

Pulmonary Rehab

Our Right to Pulmonary Rehab report highlighted how people living with chest conditions like COPD or bronchiectasis struggle to access life-changing Pulmonary Rehab. The Scottish Government has since committed to improving access to pulmonary rehab through a new Respiratory Care Action Plan.

Read more

Right to Rehab

Our One in Five report highlighted that many people with our conditions struggle to get access to rehabilitation and support, and called for the creation of a Right to Rehab so that everyone gets the help they need. In the Scottish Parliament elections in 2021 the SNP, Scottish Labour, and the Scottish Liberal Democrats all committed to establishing a Right to Rehab.

Download the one in five report. PDF 12MB.

Download

Changing lives

Our campaigns wouldn’t be successful without the help of people like you – and people like Robert and Jock. They joined our Campaigner Network and used their own stories and experiences to help fight for change.

Robert helps to Bring Back Thrombectomy

Robert Baldock suffered a serious ischemic stroke in 2017, and his life was saved by a thrombectomy. This procedure can reduce the severity of a stroke’s effect by quickly removing the blood clot that is cutting off blood flow to the brain. Robert has been left with aphasia and verbal dyspraxia but “feels incredibly lucky to be alive”.

“When I heard that thrombectomy was to be withdrawn as a method of treating those who have had an ischemic stroke, I was incredibly sad. I thought of all the people and families who would not benefit in the way that I had and whose lives would be wrecked,” he explains. “I knew I had to try and do something.”

“I live with aphasia – I know what I want to say but have difficulty finding the words to express myself. And I have verbal dyspraxia – when I have the words, I find it difficult to create the appropriate sounds.

“But Chest Heart & Stroke Scotland helped me to find my voice and tell my story, and the Bring Back Thrombectomy campaign was launched.

“I helped raise awareness of the campaign at the Scottish Parliament. I met with the Health Minister and was invited to participate in cross-party meetings.

“I found myself doing things I’d never done before, like delivering talks and making after-dinner speeches.

“Personally it was a very positive experience, and I met some interesting people.

“Getting involved in campaigning was challenging, but it also gave me an excellent opportunity to give something back in a small way for the excellent care and treatment I received.”

Read more…

Jock campaigns for the Right to Pulmonary Rehab

Retired joiner Jock Shiells, 71, lives with the debilitating lung condition, COPD, a legacy of a lifetime of working. He joined with Chest Heart & Stroke Scotland for the right to pulmonary rehabilitation in 2019 after figures revealed more people than ever in Scotland living with COPD.

“When I was first diagnosed with COPD in 2004, I had no idea about the condition. At first I thought it had been caused by me smoking, but the consultant told me my trade was to blame. As a joiner, I’d been exposed for years to all kinds of dust that had got into my lungs.

“We’re all wearing masks now because of Covid-19, but if I’d asked my boss for a mask back when I was a young apprentice, he’d have laughed at me. But that’s where the damage was done.

“So raising awareness of COPD is so important. That’s why I was delighted to be part of the campaign to improve pulmonary rehabilitation.

“It’s important that people who are living long term with COPD learn about how to manage the condition. I was basically handed an inhaler and told to get on with it. That’s no use. I wanted to be able to do things, like tend to my allotment and go swimming. I needed help to do that. Everyone with COPD does.

“As part of the campaign for better pulmonary rehab, I felt people were genuinely listening to what I had to say about the condition and how it feels to live with it. It made me feel everything was worthwhile.”

Get in touch

If you know about an issue people living with chest, heart or stroke conditions are facing and think we should take action, let us know by emailing us at campaigns@chss.org.uk or by filling out the contact form below. You can help us shape the future of services across Scotland.

Share this page
  • Was this helpful ?
  • YesNo