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Stroke Links And Contacts
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- Alcohol
- Anxiety
- Blood Thinning Medication
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- Cholesterol
- Communication
- Continence
- Diabetes
- Depression
- Driving
- Epilepsy
- Equipment, Aids And Adaptations
- Eye Problems
- Finances And Benefits
- General
- High Blood Pressure
- HRT And Osteoporosis
- Money & Benefits
- Parenting/Children
- Private Physiotherapy
- Psychotherapy
- Sex
- Shopping Online
- Smoking
- Sport
- Subarachnoid Haemorrhage
- Swallowing
- Travel And Holidays
- Weight
- Work
- Young Stroke
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A
Age Concern Scotland offers advice and information to older people. Some areas provide such services as day care or home care.
Alcohol Focus Scotland is committed to improving the quality of people’s lives by changing Scotland’s drinking culture, providing information and training on alcohol issues, raising awareness of alcohol related problems and working to influence national alcohol policy.
AntiCoagulation Europe
AntiCoagulation Europe is a charity providing information and advice to people on oral anticoagulation therapy.
Aphasia Help
is an accessiblewebsite designed for people with aphasia. It was also designed with the help of people with aphasia.
Aphasia Now
is an 'aphasia-friendly' forum for the people with aphasia and relatives.
Assist UK is a UK wide network of Disabled Living Centres that introduce people to products and solutions which make life easier and safer creating greater choice and control.
B
bbc.co.uk Health—Stroke Information
People who become isolated because of ill health, disability or social disadvantage often benefit from being matched with a befriender.
Offers confidential advice and information for people with disabilities about social security benefits and how to claim them.
Blood Pressure Association (BPA)
The BPA is for members of the public who have or are interested in high blood pressure. Free membership provides access to information, discount on products and involvement in shaping services. Subscribe to quarterly magazine Positive Pressure associated with the British Hypertension Society.
Apply for a Blue Badge Parking Permit
The Brain And Spine Foundation
The Brain and Spine Foundation develops research, education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine.
British Association for Counselling and Psychotherapy (BACP)
The British Brain And Spinal Injury Charity (B.A.S.I.C.)
BASIC raises funds for research into the brain, provides support and information for those recovering from these conditions.
British Heart Foundation (BHF)
Have local branches which can lend or hire equipment for people with disabilities. They also can help with transport and first aid training, special facilities and a holiday home.
C
Carers Scotland offers information to carers throughout Scotland as well as details of local support. It is the only Scottish carer led organisation working for all carers. Carers Scotland campaigns for a better understanding of the issues affecting and services needed for carers.
Chest, Heart & Stroke Scotland (CHSS)
CHSS aims to improve the lives of people in Scotland with chest, heart and stroke problems through medical research, advice and information, training and support in the community.
Contact the CHSS Advice Line on 0845 077 6000
If you would like to speak to one of our nurses in confidence, please call the Advice Line Monday – Friday 9:30am - 12:30pm and 1:30pm - 4:00pm
Citizen Advice Bureau (CAB) Scotland
Connect
Connect is a national charity. It provides resources and training and support for those with aphasia.
National organisation which provides personal and confidential advice from specialist nurses for people with bladder and bowel problems. They can also put you in touch with your local continence advisor.
Continence Resource Centre And Helpline For Scotland
Stroke Core Competencies
This e-learning resource provides a learning tool for health and social care staff to enable them to become more knowledgeable and skilful in the challenging area of stroke care. The resource is based on the Stroke Core Competencies which were published by NHS Education for Scotland (NES) in 2005
Incontact
Incontact is a leading national organisation that provides information and support to people with bladder and bowel problems, their carers and health professionals that look after them.
D
Department of Work and Pensions
Depression Alliance is the leading UK charity for people with depression, providing information, support and understanding.
Provides support and information for diabetics and their families and supports diabetic research.
Diabetes UK Scotland is the leading charity working for people with diabetes in Scotland—funding research, campaigning and influencing and providing care and support for people living with the condition.
Different Strokes is a national charity set up by young stroke survivors for young stroke survivors. It provides information, support and exercise opportunities, a telephone service and counselling.
Disability Benefits Helpline—for Disability Living Allowance And Attendance Allowance
Disabled Living Centres Council (Scotland)
Disabled Living Centres offer information, advice and exhibitions of products and equipment for people with disabilities.
Disabled Living Foundation (DLF)
The DLF is a leading source of information and advice on disability equipment to help solve day-to-day problems.
Disabled Persons Transport Advisory Committee
Transport and travel website for disabled and less mobile people. Contact them to get a copy of 'Access to Air Travel: Guidance For Disabled And Less Able Passengers'.
Disablement Income Group (DIG)
DIG provides a free welfare benefits information and advice service to disabled people and carers throughout Scotland.
Useful information about drinking, facts and tips about how to monitor intake.
Drivers And Vehicle Licensing Agency (DVLA)
E
Provides information, counselling, support and advice including ‘A Guide To Epilepsy'.
H
Headway—The UK Brain Injury Association
Promotes understanding of all aspects of head injury and provides information, support and services to people who have suffered a head injury, their families and carers.
Health Information Plus
Portal for health information for the public.
Specialises in helping people with inherited high cholesterol.
Provides support for older people including advice, information, grants and advocacy. Seniorline telephone advice service also available.
I
Incontact
Incontact is a leading national organisation that provides information and support to people with bladder and bowel problems, their carers and health professionals that look after them.
L
Linking Education And Disability (LEAD)
Contact your local jobcentre to make an appointment to see a Disability Employment Advisor.
M
Contact various mobile services via Yellow Pages or NHS Helpline
N
The National Advisory Committee On Stroke
The National Advisory Committee on Stroke has been appointed to monitor implementation of the recommendations on stroke contained in the CHD and Stroke Strategy for Scotland, and to advise the Scottish Executive on all matters relating to Stroke Services.
The Nerve Centre
Supporting People in Caithness and North Sutherland affected by Neurological Disorders.
Netdoctor
Medical information site which covers a wide range of health issues, including stroke.
NHS 24 is a confidential health advice and information service for people in Scotland.
NHS 24 works in partnership with local NHS Boards out-of-hours services to provide people with health advice and help when GP practices are closed.
If you or someone you care for are unwell and you feel it can’t wait until your GP surgery re-opens call NHS 24 on 0845 4 24 24 24. When calling you will be asked for your name, address, phone number, GP and any medication you are taking.
Other NHS Services
Call NHS 24 if you are looking for more information about a health matter or local healthcare services.
Online services
- NHS self help guide
- NHS health encyclopaedia
- pharmacy opening times
NIMAST
Northern Ireland Multi-Disciplinary Association For Stroke Teams
No Panic is a voluntary charity that aims to aid relief and rehabilitation from panic attacks, phobias, obsessive compulsive disorders, other related anxiety disorders, including tranquiliser withdrawal, and to provide support to sufferers and their families and or carers. Confidential daytime helpline and night-time anxiety helpline.
-
Northern Ireland Chest, Heart & Stroke Association (NICHSA)
- stroke and heart rehabilitation groups,
- nebulisers for loan
- subsided holidays in a specific holiday centre
- a helpline for chest, heart and stroke sufferers
- information leaflets
- fitness testing
- welfare grants
- supports medical research.
Provides
P
Patient UK re. statins
Patients On Intravenous And Naso-Gastric Nutrition Therapy (PINNT)
Mrs Sharon Bell
59 Loanfoot Avenue
Knightswood
Glasgow G13 3DG
Telephone 0141 959 6701
This is a charity that offers support for people receiving parenteral or enteral nutrition therapy. It also aims to promote awareness and understanding and works in conjunction with health professionals to improve life at home. They offer written advice and information about many aspects of life with nutritional therapy, a newsletter and local support groups.
PhysioFirst is the trading name of the Organisation of Chartered Physiotherapists in Private Practice (OCPPP). They are able to give you the names of chartered physiotherapists in your area who work privately.
Princess Royal Trust for Carers
Provide local support and advice for carers on all topics and information on services available locally. Centres all over Scotland but they will put you in touch with another carer organisation if necessary.
Promocon
Offer continence product information, advice and practical solutions to both professionals and the general public.
R
Relate Scotland. Click on the relevant area for contact details.
This is the umbrella organisation that covers the whole of Scotland and provides information about couple counselling in your area. They can also find more specialised services such as psychosexual counselling.
Royal National Institute for the blind (RNIB Scotland)
Provides a wide range of specialised information and services for partially sighted and blind people.
The Royal Association For Disability and Rehabilitation (RADAR)
RADAR is a disability network that campaigns for better lifestyles for disabled people and their families. They provide many services including information on holidays and accommodation, civil rights and social services.
Royal College of Physicians London
Royal College of Psychiatrists
S
Scottish Council For Voluntary Organisations (SVCO)
The Scottish Driving Assessment Service
Astley Ainslie Hospital
133 Grange Loan
Edinburgh
EH9 2HL
Telephone 0131 537 9192
Scottish Society Of Rehabilitation
Provides a multi-disciplinary forum for health and social services workers in clinical and academic practice who are interested in effective rehabilitation.
Scottish Stroke Care Audit Website
Scottish Stroke Nurses Forum (SSNF)
A forum for registered nurses in Scotland with an interest in Stroke.
Sexual Dysfunction Association
**Shetland Stroke Support Group
Scottish Audit of Intracranial Vascular Malformations
(SAIVMs)
SAIVMs is a national clinical audit, which is the result of a multicentre, multidisciplinary collaboration between representatives of the four Scottish neuroscience centres, other relevant specialists throughout NHS Scotland, patients and general practitioners (GPs).
Smokeline offers telephone advice and support to those who wish to stop smoking, as well as their family and friends. Smokeline also provides a free copy of their helpful guide to stopping smoking.
UK charity that is dedicated to helping aphasic individuals to rebuild communication through information services, self help
groups and training.
Find a speech and language therapist
Practical help and advice on dealing with anxiety and panic attacks.
Stroke Association
Provides information, family support, welfare, stroke clubs and dysphasic support for stroke sufferers in England and Wales.
Stroke Core Competencies
This e-learning resource provides a learning tool for health and social care staff to enable them to become more knowledgeable and skilful in the challenging area of stroke care. The resource is based on the Stroke Core Competencies which were published by NHS Education for Scotland (NES) in 2005.
For stroke survivors, their carers and families, and interested members of the public. Linked to the NHS e-Library.
**Stroke Services Standard Care Of The Patient In The Acute Setting from NHS Quality Improvement Scotland.
Stroke Therapy Evaluation Programme (STEP)
This is a multidisciplinary project, which has been funded by Chest, Heart & Stroke, Scotland. It produces systematic reviews of stroke rehabilitation treatments, disseminates the results of relevant rehabilitation research and identifies priority areas for future research into stroke rehabilitation.
U
Contact universities and colleges for information on going back to education.
V
Visibility is the new name for Glasgow and West of Scotland Society for the Blind. The charity provides a range of services and activities for people who are visually impaired.
Visual Impairment Services South East Scotland
W
UK charity dedicated to fighting the UK's obesity epidemic.
When Grandpa Comes Home
An online story about stroke for children.
Their vision is to do all they can to support disabled people to:
- have equality of opportunity in the job market
- be in paid employment that meets individual career aspirations
- be able to start-up in business as a serious employment option
- have the opportunity to take full advantage of their individual talent and skills
- access volunteer opportunities and work experience as genuine pathways into employment.
Y
Alcohol
Alcohol Focus Scotland is committed to improving the quality of people’s lives by changing Scotland’s drinking culture, providing information and training on alcohol issues, raising awareness of alcohol related problems and working to influence national alcohol policy.
Useful information about drinking, facts and tips about how to monitor intake.
Anxiety
No Panic is a voluntary charity that aims to aid relief and rehabilitation from panic attacks, phobias, obsessive compulsive disorders, other related anxiety disorders, including tranquiliser withdrawal, and to provide support to sufferers and their families and or carers. Confidential daytime helpline and night-time anxiety helpline.
Practical help and advice on dealing with anxiety and panic attacks.
Blood Thinning Medication
Carers Scotland offers information to carers throughout Scotland as well as details of local support. It is the only Scottish carer led organisation working for all carers. Carers Scotland campaigns for a better understanding of the issues affecting and services needed for carers.
Princess Royal Trust for Carers
Provide local support and advice for carers on all topics and information on services available locally. Centres all over Scotland but they will put you in touch with another carer organisation if necessary.
Cholesterol
Specialises in helping people with inherited high cholesterol.
Patient UK re. statins. Scroll down to 'please add your experience.' Contact Bookshop via Amazon.co.uk.
Communication
Connect
Connect is a national charity based in London. Their vision is a world where people with aphasia (communication disability) can find opportunity and fulfilment.
They work to promote effective services, new opportunities and a better quality of life for people living with aphasia.
They aim to:
- equippeople living with aphasia to reconnect with life again
- improve services and increase opportunities available for people living with aphasia by changing attitudes and practices in service provision
- increase the ways in which people living with aphasia can be authentically involved in the services and opportunities available to them.
Speech And Language Therapists
How to find a speech and language therapist.
Association of Speech and Language Therapists in Independent Practice
Helps you find a speech and language therapist working in private practice.
Continence
National organisation which provides personal and confidential advice from specialist nurses for people with bladder and bowel problems. They can also put you in touch with your local continence advisor.
Continence Resource Centre And Helpline For Scotland
The Royal Association For Disability and Rehabilitation (RADAR)
RADAR is a disability network that campaigns for better lifestyles for disabled people and their families. They provide many services including information on holidays and accommodation, civil rights and social services.
Depression
Depression Alliance is the leading UK charity for people with depression, providing information, support and understanding.
Diabetes
Provides support and information for diabetics and their families and supports diabetic research.
Diabetes Information Plus
A one-stop-shop for quality assured information for people with diabetes, their families and carers, and interested members of the public.
Diabetes UK Scotland is the leading charity working for people with diabetes in Scotland:
- funding research
- campaigning and influencing and providing care
- support for people living with the condition.
Driving
Drivers And Vehicle Licensing Agency (DVLA)
-
Driving after a stroke F9 [1.81K PDF] - Sympathetic Insurance Companies F7 [4.39K PDF]
The Scottish Driving Assessment Service
Astley Ainslie Hospital
133 Grange Loan
Edinburgh
EH9 2HL
Telephone 0131 537 9192
Epilepsy
Provides information, counselling, support and advice including ‘A Guide To Epilepsy'.
Equipment, Aids And Adaptations
Assist UK is a UK wide network of Disabled Living Centres that introduce people to products and solutions which make life easier and safer creating greater choice and control.
Have local branches which can lend or hire equipment for people with disabilities. They also can help with transport and first aid training, special facilities and a holiday home.
Disabled Living Foundation (DLF)
The DLF is a leading source of information and advice on disability equipment to help solve day-to-day problems.
Search online for store catalogues for aids and equipment.
Eye Problems
Provides a wide range of specialised information and services for partially sighted and blind people.
VisibilityVisibility is the new name for Glasgow and West of Scotland Society for the Blind. The charity provides a range of services and activities for people who are visually impaired.
Visual Impairment Services South East Scotland
Finances And Benefits
Offers confidential advice and information for people with disabilities about social security benefits and how to claim them.
Department of Work and Pensions
Disability Benefits Helpline
Offers advice on Disability Living Allowance and Attendance Allowance
General
The Royal Association For Disability and Rehabilitation (RADAR)
RADAR is a disability network that campaigns for better lifestyles for disabled people and their families. They provide many services including information on holidays and accommodation, civil rights and social services.
Stroke Information Plus
Stroke Information Plus is for stroke survivors, their carers and families, and interested members of the public.
The site provides access to
- evaluated stroke patient leaflets, information about medicines
- stroke support groups
- NHS Scotland health boards, local authorities, and Scottish health policy
- social security benefits available
- treatment guidelines
- evidence and clinical trials on which treatment is based.
High Blood Pressure
Blood Pressure Association (BPA)
The BPA is for members of the public who have or are interested in high blood pressure. Free membership provides access to information, discount on products and involvement in shaping services. Subscribe to quarterly magazine Positive Pressure associated with the British Hypertension Society.
British Hypertension Society
The British Hypertension Society provides a medical and scientific research forum to enable sharing of cutting edge research in order to understand the origin of high blood pressure and improve its treatment.
HRT And Osteoporosis
The Menopause Amarant Trust
The Menopause Amarant Trust is a charity that aims to help women deal with problems they might experience while going through the menopause. The aims are met by a nurse staffed telephone helpline, a clinic, leaflets and booklets and medical staff study days.
National Osteoporosis Society
The National Osteoporosis Society is the only national charity dedicated to improving the prevention, diagnosis, and treatment of this fragile bone disease.
Money & Benefits
Disablement Income Group (DIG)
DIG provides a free welfare benefits information and advice service to disabled people and carers throughout Scotland.
Parenting/Children
Disabled Parents Network
DPN provides information, advice and peer support to disabled parents, their families and supporters.
Disability, Pregnancy & Parenthood international (DPPi)
Disability, Pregnancy & Parenthood international (DPPi) is a small UK based registered charity, controlled by disabled parents, which promotes better awareness and support for disabled people considering, during and after pregnancy and as parents.
Private Physiotherapy
PhysioFirst is the trading name of the Organisation of Chartered Physiotherapists in Private Practice (OCPPP). They are able to give you the names of chartered physiotherapists in your area.
Psychotherapy
British Association for Counselling and Psychotherapy (BACP)
BACP works with large and small organisations within the sector ranges from advising schools on how to set up a counselling service, assisting the NHS on service provision, working with voluntary agencies and supporting independent practitioners. BACP participates in the development of counselling and psychotherapy at an international level.
British Psychological Society
The British Psychological Society is the representative body for psychology and psychologists in the UK.
Royal College of Psychiatrists
The Royal College of Psychiatrists is the professional and educational body for psychiatrists in the United Kingdom and the Republic of Ireland.
Sex
Contact Relate Scotland (formerly Couple Counselling Scotland). Click on the relevant area for contact details.
This is the umbrella organisation that covers the whole of Scotland and provides information about couple counselling in your area. They can also find more specialised services such as psychosexual counselling.
Sexual Dysfunction Association
The Sexual Dysfunction Association, (formerly the Impotence Association), is a charitable organisation, to help sufferers of male and female sexual problems and their partners and to raise awareness of the extent to which sexual conditions affect the general population. Originally, the charity focused on helping individuals with erectile dysfunction (impotence) but now it covers all forms of male and female sexual problems.
Shopping Online
Search online for supermarkets that deliver grocery shopping and store catalogues for aids and equipment.
Smoking
Smokeline offers telephone advice and support to those who wish to stop smoking, as well as their family and friends. Smokeline also provides a free copy of their helpful guide to stopping smoking.
Sport
Scottish Disability Sport
SDS is the Scottish governing and co-coordinating body of all sports for people of all ages and abilities with a physical, sensory or learning disability.
Subarachnoid Haemorrhage
The Brain and Spine Foundation develops research, education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine and to stimulate the greater allocation of resources across all neurological disorders.
Swallowing
Patients On Intravenous And Naso-Gastric Nutrition Therapy (PINNT) | or via
Mrs Sharon Bell
59 Loanfoot Avenue
Knightswood
Glasgow G13 3DG
Telephone 0141 959 6701
This is a charity that offers support for people receiving parenteral or enteral nutrition therapy. It also aims to promote awareness and understanding and works in conjunction with health professionals to improve life at home. They offer written advice and information about many aspects of life with nutritional therapy, a newsletter and local support groups.
Travel And Holidays
- Holiday Information F6 [83.7K PDF]
- Sympathetic Insurance Companies F7 [4.28K PDF]
Air Travel
Aviation Health
Aviation Health, a non-profit company, provides an invaluable, independent source of information, reference and comment on aviation health issues such as Deep Vein Thrombosis (DVT), in flight disease, radiation, and cardiovascular and pulmonary risks.
Contact Disabled Persons Transport Advisory Committee (DPTAC) for a copy of 'Access to Air Travel: Guidance For Disabled And Less Able Passengers'
Flying With Disability
Flying with Disability is a site designed to provide impartial information and advice to all disabled people around the world who travel by air.
Weight
Weight Concern
UK charity dedicated to fighting the UK's obesity epidemic.
Work
Abilitynet
AbilityNet is a registered national charity with over 20 years experience helping people adapt and adjust their information and communications technology.
Learndirect Scotland
The Scottish Government would like everyone to be able to carry on learning right throughout their life - whether it's to get a job, improve existing skills or just to find out about something because it's interesting. At learndirect scotland they help to do this by showing people, how, where and when you can learn in the way that suits them best.
Linking Education and Disability (LEAD)
Lead Scotland, Linking Education and Disability, is a voluntary organisation set up to support disabled young people and adults and carers to access post-school education.
Contact your local jobcentre to make an appointment to see a Disability Employment Advisor
Momentum
Momentum works in partnership to enable and empower disabled and excluded people to identify and achieve their goals. They support people tn their own communities, through the provision of mainstream employment and personal support services.
Scottish Council For Voluntary Organisations
The Scottish Council for Voluntary Organisations is the national body representing the voluntary sector. SCVO seeks to advance the values and shared interests of the voluntary sector.
Contact universities and colleges for information on going back to education.
Workability -Leonard Cheshire Disability
Their principal activity in the UK is the provision of services in support of disabled people in the widest context. These services include care homes, supported living, domiciliary support, day services, resource centres, rehabilitation, respite care, personal support and training and assistance for those looking for work. They operate in all parts of the UK and are the largest voluntary sector provider of care and support services for disabled people.
Young Stroke
Different Strokes. Click on ‘Contact Us’ on the sidebar for contact details.
Different Strokes is a national charity set up by young stroke survivors for young stroke survivors. It provides information, support and exercise opportunities, a telephone service and counseling.
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